Continuing the Fight
6 September 2008
NICE protest keeping up momentum
Justice for Kidney Cancer Patients have asked us to post this and we fully support them and any form of peaceful demonstrations. Let's keep that pressure on tow down load the back and front image for a demo T-shirt click on them in the image library then right click and click'save image as'.
First of all a big thank you to all who came to London on 27th August (click here for pictures.) I am aware that many of you had travelled long distances at some considerable cost to yourselves and it was greatly appreciated. It was particularly good to meet so many new friends, and to have the valued support of those of you who are already taking Sutent.
It was a great turnout and a very special occasion, and demonstrated to all just how determined to get this cruel NICE decision reversed.
We had terrific media coverage and their interest in our cause continues as they still have an appetite for more. They have been pressing me for news of our next event as they have identified that we have touched a nerve with the great British public.
I am resolved to fight this until we win, and I am asking you all to please join me again as we must now regroup and consider our next little trip to London which must be even more remarkable than the first!
1. We now need to quickly build a database of supporters for future events. Therefore, if you want to become involved can I please ask you to contact Jan at: janstone50@hotmail.com with your name, area and contact details so that we may contact you, you will also be added to the James Whale Fund's information database.
2. The James Whale Fund also require case studies from across the UK to support media activities. If you are a patient and can help, are happy to be interviewed by the media about your illness please email mvp@jameswhlaefund.org with your full contact details and the area you live.
3. The James Whale Fund have agreed to put on their website, (www.jameswhalefund.org), our t-shirt “front” and “back” logos. I would suggest that you then buy plain white t-shirts and have the design printed locally. This would then avoid having to distribute campaign material, as we are just not set up for this.
4. We could also consider wearing our t-shirts on the same day each week, say on a Saturday, as we go about our normal daily routines. This would gradually become noticed, and increase awareness all around the country.
WE ALL DESERVE THE RIGHT TO LIFE!
Clive Stone
Justice for Kidney Cancer Patients
